rare disease diagnosis Korea

[2026-03-31]Expanded Rare Disease Diagnosis Support in Korea: Eligibility, Impact, and 2026 Updates

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Korea is expanding its Rare Disease Diagnosis Support Program to improve early detection and reduce patient burden.
The 2026 program will cover 1,150 patients and 1,389 rare diseases, with enhanced family testing and follow-up support.
Implementation begins in 2026, with information available from March 31 via the KDCA Rare Disease Helpline.